General Information, Resources and Referrals Alzheimer's Disease…

General Information, Resources and Referrals

Alzheimer's Disease Research, a program of the American Health Assistance
Foundation
Resource for latest AD research news, prevention, healthy choices, treatment and
caregiving.
www.ahaf.org
301-948-3244 or 1-800-437-2423

References listed below do not constitute an endorsement or recommendation by
Alzheimer's Disease Research (ADR), and ADR is not responsible for the content
of any referenced website.

Alliance for Aging Research
Provides information on age-related medical discoveries and health topics.
www.agingresearch.org
202-293-2856

Alzheimer's Disease Education Referral Center (ADEAR), National Institute
of Aging, National Institutes of Health
Offers information for people with Alzheimer's disease, their families and
professionals, including information on clinical trials.
www.nia.nih.gov/alzheimers
1-800-438-4380

American Association of Retired Persons (AARP)
Membership organization for people over 50; informative website.
www.aarp.org
1-888-687-2277 (1-888 OUR AARP)

American Federation for Aging Research
Offers information on healthy lifestyles, age-related conditions, and diseases and
biology of aging.
www.infoaging.org
212-703-9977 or 1-888-582-2327

National Council on Aging
Provides information on healthy aging, maintaining independence and government
and private benefits programs; includes news updates of interest to seniors.
www.ncoa.org
202-479-1200

Senior Citizens Bureau
Provides information for seniors on government programs, counseling, housing,
etc. Includes a state-by-state directory for many services.
www.seniorcitizensbureau.com
1-888-801-2497 (Elder Info Line, 24-hour hotline)

State and Local Resources
Healthcare Professionals
Healthcare providers (physicians, nurses, etc.) are the first source of information
for those facing health issues.

State and Area Agencies on Aging
Each state and territory in the U.S. has an Agency on Aging office located in its
capital city, as well as local offices. Check the phone book or online by state and
area. They provide information on nutrition and support services, elder rights
programs, long term care, ombudsman programs, legal services, outreach and elder
abuse prevention.

State Departments of Health and Social Services
Each state in the U.S. has these departments, as well as local offices. They can
provide information on support and respite services, facilities, financial assistance,
and regulations and licensing. Check the phone book or online by state and
locality.


Caregiving and Caregiver Support
Caregiver Resource Center (a division of Employee Assistance Professionals,
Inc.)
Provides information on caregiving, planning for long term care services and
employee assistance.
www.caregiverresourcecenter.com
203-861-9833

CarePathways
Created and maintained by RNs to provide access to healthcare information,
products and services.
www.carepathways.com
1-877-521-9987

Children of Aging Parents
Provides information and materials for adult children caring for their older parents.
www.caps4caregivers.org
1-800-227-7294

Eldercare Online
An online caregiver support group with information and a directory of support
groups.
www.ec-online.net

Family Caregiver Alliance, National Center on Caregiving
Information, education, services, research and advocacy for those caring for people
with chronic, disabling health conditions.
www.caregiver.org
1-800-445-8106

Meals on Wheels
Provides information on local meal delivery and congregate meals for seniors.
www.mealcall.org

National Adult Day Services Association
Use the website database to find adult day services.
www.nadsa.org
1-800-558-5301

National Association of Professional Geriatric Care Managers
Health and human services specialists who help families care for older relatives
while encouraging as much independence as possible. Use the database to find a
geriatric care manager.
www.caremanager.org
520-881-8008
National Caregivers Library
An extensive online library for caregivers with articles, forms, checklists and links
to topic-
specific external resources.
www.caregiverslibrary.org

National Center for Assisted Living (NCAL)
Represents long term care providers; contains information for consumers on
assisted living.
www.ncal.org
202-842-4444


Safety

Alzheimer's Disease Education and Referral Center (ADEAR), National
Institute of Aging, National Institutes of Health
This section of the ADEAR website offers information on Alzheimer's-related
safety issues, and includes a room-by-room safety checklist (also available as a
print publication)
www.nia.nih.gov/Alzheimers/Publications/homesafety.htm#room
1-800-438-4380

AllegroMedical.com
Offers a variety of home healthcare products, including safety products.
www.allegromedical.com
1-800-861-3211

The Alzheimer's Store
Offers safety products to deal with wandering and other Alzheimer's safety issues.
www.alzstore.com
1-800-752-3238

MedicAlert Foundation International
Offers emblems and chains engraved with the person's membership number,
primary medical conditions and the toll-free 24-hour Emergency Response Center
number. This information enables personal identification, relays key medical facts
and notifies the person's family contacts.
www.medicalert.org
1-888-633-4298
209-668-3333 (from outside the U.S.)

Fisher Products
Offers home healthcare products.
www.fishershops.com
1-866-804-4042

Sears Home Health Care Specialogue
Offers a wide variety of home healthcare products for seniors.
www.searshealthandwellness.com
1-800-326-1750


Government Programs
Administration on Aging, U.S. Department of Health and Human Services
A starting point for information on aging for elders and families.
www.aoa.gov
202-619-0724

Alzheimer's Disease Education and Referral Center (ADEAR), National
Institute of Aging, National Institutes of Health
Provides current Alzheimer's disease information and resources from the National
Institute on Aging (NIA).
www.nia.nih.gov/alzheimers
1-800-438-4380

Centers for Medicare and Medicaid Services, U.S. Department of Health and
Human Services
Offer latest information and resources on Medicare and Medicaid.
www.cms.hhs.gov
1-800-633-4227

DisabilityInfo.gov
Provides people with disabilities information and available government programs
on benefits, civil rights, community life, education, employment, housing, health,
technology and transportation.
www.disabilityinfo.gov
1-800-FED-INFO (1-800-333-4636)
Eldercare Locator
Provides resource information for older adults in any U.S. community; referrals to
state and local area agencies on aging and community-based organizations that
serve many elder care needs; English and Spanish speaking information specialists.
www.eldercare.gov
1-800-677-1116

GovBenefits.gov
A partnership of federal agencies that provides access to government assistance
programs.
www.govbenefits.gov
1-800-FED-INFO (1-800-333-4636)

Medline Plus
Service of the U.S. National Library of Medicine and the National Institutes of
Health that provides information on many health topics.
www.medlineplus.gov

Medicaid
Program funded by federal and state governments to assist those who do not have
the resources to pay for healthcare. Check the phonebook or online by state.

Medicare
Federal program that pays for certain healthcare expenses. Call 24:7 for assistance;
English and Spanish-speaking customer service.
www.medicare.gov
1-800-633-4227; (1-800-MEDICARE)

National Clearinghouse for Long-Term Care Info, U.S. Department of Health
and Human Services
Offers information on long term care, planning and payment strategies.
www.longtermcare.gov

National Institute of Neurological Disorders and Stroke, National Institutes of
Health
Provides general information on Alzheimer's disease, websites and some
publications on its Alzheimer's disease page.
www.ninds.nih.gov
National Institute on Aging, National Institutes of Health
www.nia.nih.gov (www.nihseniorhealth.gov also contains general information)
301-496-1752; TTY 1-800-222-4225

Social Security Administration
Social Security is a federal program that provides retirement and disability
benefits.
www.ssa.gov
1-800-772-1213


Financial Assistance
Benefits Checkup, National Council on Aging
Provides information on federal and state programs that offer assistance in paying
for prescription drugs, utility bills, health care and other needs of older Americans.
www.benefitscheckup.org

Hill Burton Program, Health Resources and Services Administration, U.S.
Department of Human Health and Services Administration
The program ended in 1997, but about 300 hospitals and health care facilities are
still obligated to provide free or reduced cost care; there is a website directory.
www.hrsa.gov/hillburton
1-800-638-0742 (1-800-492-0359 in Maryland)

Partnership for Prescription Assistance
Helps qualifying patients who lack prescription coverage get the medicines they
need through appropriate public or private programs.
www.pparx.org
1-888-477-2669 (1-888-4PPA-NOW)

RxAssist
Offers information on patient assistance programs sponsored by pharmaceutical
companies that provide free medications to those who cannot afford them.
www.rxassist.org
401-729-3284

United Project Community for Better Health
An online community for those who want access to better healthcare options.
www.unitedproject.org
Legal Assistance
American Bar Association and state bar associations
Provides information to help find legal assistance and locate lawyers. Part of the
website deals specifically with legal issues of aging.
www.abanet.org
www.abanet.org/aging/home.html
1-800-285-2221

ElderLawAnswers.com
Find an attorney, resources and information on financial and legal issues of aging.
www.elderlawanswers.com
1-866-267-0947

National Academy of Elder Law Attorneys
Use the database to find an elder law attorney in the private or public sector who
deals with legal issues affecting the elderly and disabled.
www.naela.com
520-881-4005


Long Term Care and Living Options

American Association for Homes and Services for the Aging
Provides information about and contains a directory of services and care facilities
for elders.
www.aahsa.org
Commission on Accreditation of Rehabilitation Facilities
Offers advice on finding an accredited rehabilitation facility.
www.carf.org
1-888-281-6531

Helpguide.org
"Senior Housing and Care" section of website provides information on long term
care and housing options.
www.helpguide.org
My Guide for SeniorsTM
Includes a senior housing guide, including options for those with Alzheimer's
disease.
www.myguideforseniors.com
1-800-851-4511

MyZiva.net®
The Complete Nursing Home Guide
Provides information on finding, selecting and paying for nursing homes.
www.myziva.net

seniorDECISION.com
Offers a list of home health care and senior housing options by state and area with
consumer ratings and reviews.
www.seniordecision.com

SNAPforSeniorsTM
Provides a senior housing options guide.
www.snapforseniors.com
1-888-651-7627


Research and Clinical Trials

Alzheimer's Disease Clinical Trials Database
A joint project of the U.S. Food and Drug Administration and the National Institute
on Aging (NIA) maintained by the NIA's Alzheimer's Disease Education and
Referral Center; database of clinical trials on Alzheimer's disease and dementia
underway at sites throughout the U.S.
http://www.alzheimers.org/clinicaltrials/search.asp

National Institute on Aging, National Institutes of Health
Provides information on government-sponsored human trials and recruitment.
www.nia.nih.gov/HealthInformation/ClinicalTrials.htm
www.clinicaltrials.gov

CenterWatch Clinical Trials Listing Service
Provides information about clinical research, including listings of active industry
and government-sponsored clinical trials, research on new drug therapies and drugs
recently approved by the Food and Drug Administration.
www.centerwatch.com

Alzheimer Research Forum
Lists trials of potential treatments for Alzheimer's disease and has a section
seeking trial participants.
www.alzforum.org


Hospice Care
Caring Connections
Provides information on advanced care planning, financial matters, caregiving and
hospice care.
www.caringinfo.org
1-800-658-8898; Spanish Helpline: 1-877-658-8896

National Association for Home Care & Hospice
Click on "Consumer Information" to access database of local hospice providers.
www.nahc.org
202-547-7424

National Hospice and Palliative Care Organization
Use website to locate member hospices.
www.nhpco.org




The above information should not in any way substitute for the advice of a qualified
health care professional and is not intended to constitute medical advice. For further
information, contact Alzheimer's Disease Research, a program of the American Health
Assistance Foundation, at 22512 Gateway Center Drive, Clarksburg, Maryland 20871,
call 1-800-437-2423 or visit our website at www.ahaf.org.
                                         HU            UH




                                                                         January 2008