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Kaiser Public Opinion Spotlights provide in-depth analysis of public…

Tags: 3 years, affordability, clock care, family member, good job, health care consumers, health care industry, health insurance, health insurance companies, health policy, high quality services, hmos, kaiser, kff, long term care, majorities, nursing home care, nursing homes, pharmaceutical companies, public opinion,
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Language: english
Created: Thu Dec 6 11:38:24 2007
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Kaiser Public Opinion Spotlights provide in-depth analysis of public opinion on a variety of health care
and health policy topics. Each Spotlight uses public opinion data from Kaiser surveys and other
sources to examine current views and trends. All Spotlights available at www.kff.org/spotlight.

Updated: December 2007

The Public's Views On Long-Term Care
Most Americans (84%) have had at least some experience with nursing homes ­ either as a
patient or a visitor. In addition, nearly seven in ten (68%) have a family member or close
friend who has been in a nursing home or received long-term care in the past 3 years.

Views On Nursing Homes
Compared with other players in the health care industry, nursing homes rank relatively low
in the share of adults who say they are doing a "good job" serving health care consumers.
While majorities say nurses (84%), doctors (69%), and hospitals (64%) do a "good job"
serving consumers, nursing homes (35%) rank below pharmaceutical companies (43%) and
just above health insurance companies (34%) and HMOs (30%).

Views on the affordability and quality of nursing home care are mixed. While more than
half (55%) of the public agrees that nursing homes provide an affordable way for people to
get round-the-clock care, nearly four in ten (37%) disagree. Similarly, while half (50%) of
the public agree that nursing homes provide high-quality services, four in ten (40%)
disagree. The vast majority of adults (86%) are concerned about the quality of nursing
home care available in the country today. In addition, nine in ten (92%) express concern
about the quality of care provided to seniors and those with disabilities who receive care in
these homes.

Indeed, the public is somewhat wary of nursing home care ­ twice as many adults say being
in a nursing home makes people "worse off" than they were before (41%) as say that
nursing homes make people "better off" (19%). Furthermore, when asked their preference
if they required long-term care, just 4% would choose to get care in a nursing home (4%)
and 17% would choose an assisted living facility. Most (53%) would opt for care at home,
while 21% would prefer to move in with family.

While most Americans agree that nursing home staff members are concerned about the
well-being of their patients (67%), many believe nursing homes are understaffed (75%)
and have staff that are often poorly trained (63%).
                                                                                           2

Paying for Long-Term Care
In terms of paying for long-term care, three in ten (30%) adults believe insurance would be
the main source of funds if they or a family member needed nursing home care. Fewer say
personal savings (16%) or government programs such as Medicare or Medicaid (13%)
would be the main source. In reality, private insurance is estimated to pay for a small
share of nursing home expenses (8%), while Medicaid (46%) is the major source of
financing for nursing home care.

Few Americans report having long-term care insurance - just over two in ten (21%) adults
say they have a long-term care policy. The most commonly cited reason among those
without a policy is cost (59%). However, nearly one-third (32%) of people without long-
term care insurance say it's just not something they've ever thought about.

There is a fair amount of concern about paying for long-term care, with nearly three in ten
(28%) adults saying they are "very" worried that they won't be able to pay for nursing
home and home care services in the future. Just over one-quarter (26%) of adults say they
have given "a lot" of thought to how they will pay for long-term care, and this share
increases with age.

Government's Role In Long-Term Care
Americans see a role for government in regulating nursing home quality. About six in ten
(64%) adults agree that there is not enough government regulation of the quality of nursing
homes and almost half (48%) said nursing homes are not paid enough by the government
and other insurers.

Sources of Information About Nursing Homes
Many Americans are unsure of where to get advice and information about nursing homes ­
57% say they would not know where to go for advice or information if a family member
needed nursing home care. The public seems most comfortable getting information and
advice about nursing home care from personal sources. Many more say they would be
"very likely" to go to friends and family (59%) or their doctor (54%) for information,
compared with government websites (27%), community service agencies (25%),
books/reports (25%) or government programs (23%).


Click on a title below to jump to that section of the Spotlight:
Experience With Long-Term Care
Concern About Long-Term Care
Planning For Long-Term Care
Views On Benefits Of Nursing Homes
Views Of Nursing Homes In Relation To Other Industries
Views On Nursing Home Care
Perceived Quality Of Long-Term Care
Impressions Of Nursing Home Care And Staffing
Where Do Views Of Nursing Homes Come From?
Cost of Nursing Home Care
Long-Term Care Insurance
Tax Credits For Long-Term Care Insurance
Government Regulation Of Nursing Homes
Knowledge Of Government Programs
Sources Of Information About Nursing Home Care
Why Do People Rely On Medicaid To Pay For Nursing Home Care?
                                                                                                                       3

Experience With Long-Term Care

Half (50%) of the public says a family member or someone they know well has been in a
nursing home in the past 3 years. Half (53%) also says that in the past 3 years, a family
member or someone they know well has received care either at home or in another type of
facility, such as an assisted living facility, because they needed help taking care of
themselves. Nearly seven in ten (68%) say a family member or close acquaintance has
either been in a nursing home OR received long-term care in the past 3 years.

 Experience With Long-Term Care

      At any time during the past 3 years, was a member of your immediate family or someone you know well...

                                                                      Yes             No


        A resident in a
                                                50%                                                 50%
         nursing home

     Receiving care at
   home or in another
  type of facility, such                          53%                                                 46%
     as assisted living




     Either in a nursing
   home or at home/in                                    68%                                                 31%
 another type of facility



Source: KFF Update on the Public's Views of Nursing Homes and Long-Term Care Services (conducted October 1­10, 2007)
                                                                                                                     4

Concern About Long-Term Care

There is a fair amount of concern about paying for long-term care, with nearly three in ten
(28%) saying they are "very" worried that they won't be able to pay for nursing home and
home care services.

Middle-aged adults are more worried about paying for nursing home care than their younger
and older counterparts. More than three in ten (32%) adults ages 30-64 say they are
"very" worried about paying for nursing home care, compared with fewer than two in ten
adults ages 18-29 (18%) and just under one-quarter of seniors (24%).


 Concern About Long-Term Care

   How worried are you that you won't be able to pay for nursing home and home care services?


                                                                                         Percent "very" worried...

        Very                                Somewhat
      worried                               worried                            Total         28%



                                                                        Ages 18-29        18%
                                      25%
                     28%

                                                                        Ages 30-49             32%

 Don't
 know 1%                                  17%
                                                                        Ages 50-64             32%
                      29%
                                                  Not too
                                                  worried              Ages 65 and
                                                                                            24%
                                                                              over
        Not at all
        worried

 Source: Kaiser Family Foundation Health Poll Report Survey (conducted June 2-5, 2005)
                                                                                                                    5

Planning For Long-Term Care

Just over one-quarter of Americans (26%) say they have given "a lot" of thought to how
they will pay for long-term care. Not surprisingly, the share of adults who say they have
thought about how to pay for long-term care increases with age. While just one in ten
(10%) adults ages 18-29 say they have given these plans "a lot" of thought, more than two
in ten (23%) adults ages 30-49, three in ten (33%) adults ages 50-64 and four in ten
(43%) seniors say the same.


 Planning For Long-Term Care
      When thinking about your financial needs in retirement, how much thought have you given to how to pay for long-
      term care in a nursing home or home heath care costs not covered by Medicare?

                                            A lot of                  A little             No
                                            thought                   thought              thought

                        Total            26%                         41%                       33%



                 Ages 18-29        10%                 37%                               53%



                 Ages 30-49             23%                       41%                          36%



                 Ages 50-64                 33%                             45%                      22%



          Ages 65 and over                      43%                                41%                16%


 Source: Kaiser Family Foundation Health Poll Report Survey (conducted June 2-5, 2005)
                                                                                                                          6

Views On Benefits Of Nursing Homes

Adults express mixed feelings about the benefits that nursing home care provides. Half
(50%) of adults agree that nursing homes provide high-quality services for people who need
them, but a substantial share, about four in ten (40%), disagrees. And, while slightly over
half (55%) of the public agrees that nursing homes provide an affordable way for people to
get round-the-clock care, nearly four in ten (37%) disagree with this statement (including
22% who "strongly" disagree).


 Views On Benefits Of Nursing Homes

     Percent who agree/disagree with the following statements ...


                                                         Strongly         Somewhat          Somewhat           Strongly
                                                         agree            agree             disagree           disagree


               Nursing homes provide high-quality
                services for people who need them        12%              38%                 21%           19%




              Nursing homes provide an affordable
              way for people who need round-the-            21%                34%              15%         22%
                     clock care to be able to get it




Source: KFF Update on the Public's Views of Nursing Homes and Long-Term Care Services (conducted October 1­10, 2007)
                                                                                                        7

Views Of Nursing Homes In Relation To Other Industries

Compared with other players in the health care industry, nursing homes rank relatively low
in terms of the share of adults who say they are doing a "good job" serving health care
consumers. A large majority of the public say nurses (84%) are doing a "good job" serving
consumers, and somewhat smaller majorities say the same about doctors (69%) and
hospitals (64%).

Fewer adults say pharmaceutical companies (43%) do a "good job" serving health care
consumers, and fewer still say nursing homes (35%), health insurance companies (34%),
and HMOs (30%) do a "good job".

 Views Of Nursing Homes In Relation To Other Industries
   Percent who say each of the following is doing a "good job" serving health care consumers...


                                              Nurses                                              84%


                                             Doctors                                        69%


                                           Hospitals                                     64%


                Pharmaceutical or drug companies                                43%


                                   Nursing homes                          35%


                       Health insurance companies                        34%


                         HMOs/managed care plans                      30%


 Source: Kaiser Family Foundation Health Poll Report Survey (conducted June 2-5, 2005)
                                                                                                                               8

Views On Nursing Home Care

The public is wary of whether nursing home care benefits patients. Twice as many adults
say being in a nursing home makes people "worse off" than they were before (41%), as say
that nursing homes make people "better off" (19%). Although, almost one-quarter (23%)
of adults believe being in a nursing home doesn't make much difference in patients' well-
being.

Furthermore, few people say they would choose to get care in a nursing home when given
multiple options. Only 4% of adults say when they get older, if they are unable to care for
themselves for an extended period of time, that they would prefer to get care in a nursing
home, while nearly two in ten (17%) would prefer to move into an assisted living facility.
Over half (53%) say they would prefer to receive care in their own homes, and two in ten
(21%) would prefer to move in with family.

 Views On Nursing Home Care
      For most people who move into a nursing home,                 When you get older, if you become unable to care for
      do you think being in the nursing home makes                  yourself for an extended period of time, which of the
      them better or worse off than they were before, or            following would you prefer? (2007)
      doesn't it make much difference? (2005)


         Better                                 Worse            Receive care
         off                                    off              in your home                                    Move in
                                                                                                                 with family
                                    41%
                                                                                                        21%
                  19%
                                                                                   53%



                                                                                                        17%
                    17%
                                  23%
                                                                                                               Move into an
            Don't                                                                                              assisted living
            know                         No                                                                    facility
                                         difference                             None/Other/ 4% 4%
                                                                                Don't know     Move into a
                                                                                               nursing home
Sources: Kaiser Family Foundation Health Poll Report Survey (conducted June 2-5, 2005);
KFF Update on the Public's Views of Nursing Homes and Long-Term Care Services (conducted October 1­10, 2007)
                                                                                                                             9

Perceived Quality Of Long-Term Care

The vast majority of adults (86%) are concerned about the quality of nursing home care
available in the country today, including half (51%) who say they are "very" concerned.
Similarly, when asked about seniors and people with disabilities who live at home and need
help caring for themselves, nine in ten (92%) adults say they are concerned about the
quality of care provided to these groups, including nearly six in ten (59%) who say they are
"very" concerned.

Furthermore, three in ten (31%) say the quality of nursing homes has gotten worse over
the past five years ­ twice as many as those who say it has gotten better (14%). About
one-third (32%) say quality has stayed the same in the past five years.

  Perceived Quality Of Long-Term Care

         How concerned are you, if at all, about the quality of...?            During the past five years, do you think that the
                                                                               quality of nursing homes in this country has...

                Very             Somewhat           Not too/Not at all
                concerned        concerned          concerned                                                       Gotten
                                                                                                                    worse


     Nursing home                                                                   Gotten
     care available                                                                 better                    31%
    in this country              51%                      35%            12%
                                                                                              14%
              today




  Care provided to                                                                                               32%
                                                                                             24%
seniors and people                 59%                        33%         7%        Don't
   with disabilities                                                                know
    living at home

                                                                                                                    Stayed about
                                                                                                                    the same
 Source: KFF Update on the Public's Views of Nursing Homes and Long-Term Care Services (conducted October 1­10, 2007)
                                                                                                                             10

Impressions Of Nursing Home Care And Staffing

Most Americans believe the staff of nursing homes are concerned for residents' well-being
(67% agree). Despite their perception, just under half (46%) agree that nursing homes are
a decent place to stay, with fewer than one in ten (8%) who "strongly" agree, while a
similar share (44%) disagree that they are a decent place to stay. Many Americans also say
nursing homes are understaffed (75%) and staff are often poorly trained (63%).

 Impressions Of Nursing Home Care And Staffing
  Percent who agree ...                                         Strongly         Somewhat         Somewhat             Strongly
                                                                agree            agree            disagree             disagree



               Nursing homes don't have enough staff                       53%                     22%        8% 4%




   The staff at nursing homes are often poorly trained              35%                  28%            16%      8%




         Nursing homes have staff who are concerned
                                                              19%                   48%                  13%      12%
                about the well-being of their patients




             Nursing homes are a decent place to stay     8%               38%                21%            23%



Source: KFF Update on the Public's Views of Nursing Homes and Long-Term Care Services (conducted October 1­10, 2007)
                                                                                                                        11

Where Do Views Of Nursing Homes Come From?

The public's views on nursing homes come mainly from personal experience or the
experience of friends and family. Nearly three-quarters of adults say their impressions of
nursing homes in this country are based mainly on the experiences of friends and family
(43%) or their own experience (31%). Just over two in ten (21%) say they rely mainly on
information from media sources such as TV and newspapers. Indeed, many people have
had first-hand experience with nursing homes, since over eight in ten (84%) say they have
been a patient or a visitor in a nursing home.

 Where Do Views Of Nursing Homes Come From?

     Percent who say their impression of nursing homes in                    Have you ever been in a nursing home, either
     this country is based mainly on...                                      as a patient or as a visitor?

  Experience of
  friends and family
                                                                                  Yes
                                                     Own
                                                     experience

                   43%
                                           31%

                                                                                         84%              16%          No




                                    21%
                       5%

              Other/                      Information from television,
            Don't know                    radio, or newspapers and
                                          other media
 Source: Kaiser Family Foundation Health Poll Report Survey (conducted June 2-5, 2005)
                                                                                                                             12

Cost Of Nursing Home Care

More than four in ten Americans correctly guess that one year in a nursing home costs
between $60,000 (26%) and $80,000 (18%) per year (national average for a private room
is approximately $70,000/year1). About one-third of the public underestimate the cost
(26% say $40,000 a year and 6% guess $20,000) and 16% overestimate that a year of
nursing home care would cost about $100,000.

Three in ten (30%) adults believe that insurance would be the main source of funds to pay
for nursing home care if they or a family member needed it. Fewer say personal savings
(16%) or government programs such as Medicare or Medicaid (13%) would be the main
source. Very few say family (3%) or Social Security (2%) would pay nursing home bills.
Three in ten (30%) Americans don't know or refuse to say how they would pay for long-
term care if they or a family member had to go to a nursing home.

In fact, Medicaid is the largest source of financing for nursing home care, paying almost half
(46%) of nursing home expenses, while private insurance pays for just 8%. More than one-
quarter of nursing home expenses (28%) are paid out-of-pocket.2

    Cost Of Nursing Home Care
       Which of the following do you think comes closest        If you or a family member had a long term illness or
       to what one year in a nursing home would cost?           disability and had to go into a nursing home, how
       *National average approx $70,000/year                    would the bill mainly be paid? (OPEN-ENDED)

                $20,000      6%                                              Insurance                          30%


                 $40,000                     26%                          Self/Savings             16%


                                                               Medicare/Medicaid/Gov't           13%
                 $60,000                     26%

                                                                                Family        3%
                 $80,000              18%
                                                                         Social Security     2%
               $100,000             16%
                                                                                  Other     7%

      Don't know/Refused     7%
                                                                     Don't know/Refused                         30%

    Source: Kaiser Family Foundation National Survey on the         Source: Kaiser Family Foundation Health Poll Report Survey
    Public's Views About Medicaid (conducted April-May 2005)        (conducted June 2-5, 2005)




1
    Kaiser Family Foundation, Health Care and the 2004 Election: Long-Term Care 2004
2
    Kaiser Commission on Medicaid and the Uninsured, Medicaid and Long-Term Care, March 2005
                                                                                                                           13

Long-Term Care Insurance

Just over two in ten (21%) adults say they had a long-term care insurance policy, while
nearly seven in ten (68%) say they do not.

The most commonly cited reason among those without a policy is cost. Nearly six in ten
(59%) adults without a long-term care policy say the cost was a major reason they don't
have a policy. Around three in ten (32%) admit long-term care was just not something
they think about, while about the same share (30%) say the policies don't cover enough of
the expense of long-term care.

About one-quarter (24%) of those without long-term care insurance expect that their family
will take care of their long-term care needs. And about two in ten say a major reason they
don't have long-term care insurance is that Medicare (23%) or Medicaid (21%) will cover
the cost of care.

 Long-Term Care Insurance
    Do you have a private long-term care insurance                 Of the 68% who say they do NOT have long-term
    policy, (insurance that pays for nursing home and              care insurance, percent who say each of the following
    home care services over a long period of time?                 is a major reason why not...


                                                                 The policies cost too much                       59%
                                              No
          Yes
                                                                It's not something you ever
                                                                                                      32%
                                                                             thought about
                21%
                                                                    The policies don't cover
                                                                                                     30%
                                                                    enough of the expenses
                                        68%
                                                                    Family will take care of
                                                                                                  24%
                11%                                              your long-term care needs
     Don't
     know                                                          Medicare will cover your
                                                                     long-term care costs        23%

                                                                    Medicaid will cover your
                                                                      long-term care costs      21%


 Source: Kaiser Family Foundation Health Poll Report Survey (conducted June 2-5, 2005)
                                                                                                                     14

Tax Credits For Long-Term Care Insurance

The public is mixed on whether a federal tax-credit would encourage them to buy long-term
care insurance. About half (48%) say a tax credit would make them more likely to buy a
policy, while the same share (48%) say it would not.

Younger adults appear to be more encouraged by the prospect of a tax credit ­ over half
(51%) of adults ages 18-64 say a tax credit would make them more likely to purchase long-
term care insurance, while just over one-third (34%) of seniors say the same.


 Tax Credits For Long-term Care Insurance
      If the federal government were to give you a tax deduction or tax credit, would this make you more likely to
      purchase long-term care insurance, or wouldn't it make any difference?


                                                   Yes                  No                 Don't know



                         Total                     48%                                   48%                  4%




                 Ages 18-64                         51%                                   47%                 2%




          Ages 65 and over                   34%                                 55%                    10%




 Source: Kaiser Family Foundation Health Poll Report Survey (conducted June 2-5, 2005)
                                                                                                                          15

Government Regulation Of Nursing Homes

Many adults believe the government is not doing enough to regulate the quality of nursing
homes. Over six in ten (64%) adults agree that there is not enough government regulation
of the quality of nursing homes (19% disagree with this statement), and nearly six in ten
(59%) say the government is not enforcing quality standards for nursing homes (22%
disagree).

Almost one-half (48%) of the public says nursing homes are not paid enough by the
government and other insurers, while one-quarter disagrees (26%). More than one-quarter
(26%) aren't sure whether nursing homes should be paid more or not.


 Government Regulation Of Nursing Homes
     Percent who agree/disagree with the following statements ...


                                                                    Agree             Disagree             Don't know


       There is not enough government regulation
           of the quality of nursing homes (2007)                           64%                        19%          16%




               Government is not enforcing quality
                                                                         59%                         22%           18%
               standards for nursing homes (2005)




               Nursing homes are not paid enough
                money by Medicare, Medicaid, and                     48%                       26%               26%
                           other insurers (2005)



Sources: KFF Update on the Public's Views of Nursing Homes and Long-Term Care Services (conducted October 1­10, 2007);
Kaiser Family Foundation Health Poll Report Survey (conducted June 2-5, 2005)
                                                                                                                    16

Knowledge Of Government Programs

Fewer than four in ten (38%) adults are able to correctly identify Medicaid as the primary
source of health insurance for low-income and people who need long-term care. Many
believe Medicare (32%) is main source of insurance for these groups, while 14% say some
other program, and 17% don't know.


 Knowledge Of Government Programs

   Which of the following government programs is the primary source of health insurance for low-income people
   who need nursing home care or home care over a long period of time... (*Correct answer)




                              Medicare                                             Medicaid*


                                                                        38%
                                             32%




                                                 17%              14%

                                     Don't
                                     know                                Other program

 Source: Kaiser Family Foundation National Survey on the Public's Views About Medicaid (conducted April-May 2005)
                                                                                                                         17

Sources Of Information About Nursing Home Care

Many Americans are unsure of where they would go to get advice and information about
nursing homes. Nearly six in ten (57%) say they would not know where to go for advice or
information if a family member needed nursing home care; about four in ten (41%) say
they would know where to go.

The public seems most comfortable getting information and advice about nursing home care
from personal sources. About six in ten (59%) say they would be "very likely" to go to
friends and family for information or advice about nursing home care, and more than five in
ten (54%) say they would be "very likely" to rely on their doctor.

Around one-quarter of the public say they would be "very likely" to get information from
government websites (27%), from community service agencies (25%), books or reports
(25%) or government programs (23%).

 Sources Of Information About Nursing Home Care
   If you or a family member needed nursing home,                Percent who say they would be "very likely" to go to each
   do you know where you would go for advice or                  of the following for advice or information about nursing
   information?                                                  home care...

                                                                      Friends or family
    Yes, know                                                                                                     59%
                                              No, not                        members
    where to                                  sure where
    go                                        to go
                                                                            Your doctor                         54%


                                                              Information on the Internet
                 41%                                           from government agencies         27%
                                      57%

                                                                    A community service
                                                                                               25%
                                                                                agency


                                                              Books or reports on how to
                                                                  choose these services        25%

                     2%
                                                         Government programs that deal
                Don't know                                                                    23%
                                                             with problems of the aging


 Source: Kaiser Family Foundation Health Poll Report Survey (conducted June 2-5, 2005)
                                                                                                                      18

Why Do People Rely On Medicaid To Pay For Nursing Home Care?

When asked about some of the reasons why people might rely on Medicaid to pay their
nursing home bills, much of the public says that people not having family support to pay
their bills (80%) is a major reason, as well as people not having long-term care insurance
(79%), or not having other insurance that covers nursing home care (76%).

About two-thirds of people say that Medicare not paying for long-term care (68%) is a
major reason, and that people haven't planned ahead to pay their own bills (65%). And
fewer adults believe that people are dependent on Medicaid because they don't plan on
going into a nursing home (46%).

 Why Do People Rely On Medicaid To Pay For Nursing Home Care?
  Percent who say each is a major reason why people rely on the Medicaid program to pay their nursing home bills...

        They do not have family members who are willing or
                                                                                                               80%
                        able to pay their nursing home bills


                  They do not have long term care insurance                                                   79%


             Their other health insurance does not cover the
                                                                                                            76%
                                       cost of nursing homes

         Because Medicare does not pay for long term health
                                                  care costs                                           68%


          They have not planned ahead, so they do not have
                                                                                                     65%
                        the money to pay for their own bills


             They planned on staying at home and not going
                                                                                         46%
                                        into a nursing home


 Source: Kaiser Family Foundation National Survey on the Public's Views About Medicaid (conducted April-May 2005)